Archie

Starting school can be a nerve-racking time for any parent but with Archie’s complex needs, his mum Gemma was especially worried about how he would cope in the new setting.

Archie is a determined, inquisitive and competitive young boy. Archie also happens to have complex physical disabilities and health needs. He has a diagnosis of the rare Pompe Disease, severe neuromuscular weakness and uses a ventilator. The only movement he has is very little in his hands. He lives at home with his parents and has nursing care overnight, seven days a week.

Archie has more opportunity for activities than he could have ever hoped for at home. With switches, hydrotherapy,musical instruments, rebound therapy and powered wheelchair driving to name a few, Chailey Heritage School provides stimulation for Archie throughout the day.

Since joining Chailey Heritage School in 2016, Archie has thrived in a number of areas. Before coming here, communicating with Archie required his mum to be there to interpret his facial expressions. Working with the staff, Archie has been able to develop a yes/no response, which enables him to clearly make his own choices.

Archie has also been using the Chailey Communication System (CCS) to help with his interactions. The CCS is a symbol communication book which has 16 categories, each with a number of subcategories and potentially an unlimited number of vocabulary items. CCS provides huge flexibility and it enables Archie to express words, short phrases and complex novel phrases. He has even begun putting short stories together!

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